Mom of Boy with Rare Condition Shares Their Life, People React Differently

Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.

At first, everything seemed normal.

Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.

For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.

Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.

Then the news of the diagnosis hit the parents, something no one could have anticipated.

As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.

Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.

Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.

In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.

His mother uses social media to spread awareness about his condition.

At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.

Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.

Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.

Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.

As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”

People in comments react differently.

Mostly people express support and empathy.

But some show a bit of skepticism.

  • Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
  • I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram

Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.

Bobby Sherman Quit Music at the Height of His Career – His Shocking Reason Revealed

Bobby Sherman was one of the biggest music stars during the 1960s and 1970s. Back then, it seemed like everyone had a crush on him.

He released several albums, became a well-known actor, performed for thousands of fans, and sold millions of records. But even with all his success, Sherman made the surprising decision to leave show business for good while he was still famous.

It wasn’t because he felt like he wasn’t talented anymore. Instead, he left for a bigger purpose—he wanted to save lives.

Here’s everything you need to know about the legendary Bobby Sherman!

Bobby Sherman was born on July 22, 1943, in Santa Monica, California, and grew up in Van Nuys, near Los Angeles.

**Bobby Sherman – Early Life**
By the time he was 11, Sherman had learned to play the trumpet and later mastered other instruments like the piano, trombone, and guitar. He attended Birmingham High School, where he joined a band and developed a strong interest in singing. Over the years, Sherman reportedly learned to play an impressive 16 instruments.

After graduating high school in 1961, he began studying at Pierce College in Woodland Hills, near Los Angeles. It was during this time that a relationship changed his life forever.

Sherman was studying child psychology at Pierce College when he met his first girlfriend. One night, she invited him to a cast party for *The Greatest Story Ever Told*.

By then, Sherman had already started performing music with different bands around the San Fernando Valley, and many people recognized his talent. At the party, Sherman didn’t hesitate to showcase his voice.

“I was always the guy who had the gumption to get up and sing in front of people,” he later said.

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At the Hollywood party, Bobby Sherman had some friends playing in the band on stage, which made it easier for him to get up and sing. He performed Ray Charles’ “What I’d Say” in front of the crowd.

**Discovered at a Hollywood Party**
Since it was a Hollywood party, many famous people from the entertainment industry were there, including stars like Sal Mineo, Natalie Wood, and Jane Fonda.

After his performance, they recognized his talent. Sal Mineo, especially, took notice and decided to mentor him.

“People were saying things like, ‘Who’s handling you?’ I had no idea what that meant,” Sherman recalled.

“Well, I was just a kid from Van Nuys, and I was like, ‘What do they mean, handling me?’ Then I realized they were talking about representation.”

Sherman quickly got a taste of Hollywood life. Just three days later, an agent—who had heard about him from one of the party guests—sent him to an audition. It was for a new television show called *Shindig*, and Bobby landed a featured role.

His time on *Shindig* lasted only two years, but that was enough to get him noticed. By then, people across the country had fallen in love with him, and job offers started pouring in.

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When *Shindig* was canceled in 1966, Bobby Sherman guest-starred on several other shows, including *The Monkees*, *Honey West*, and *The FBI*. He was starting to become a heartthrob in Hollywood, but it was in 1968 that he really made it big.

**Bobby Sherman – Music, Songs, Albums, Acting**
Sherman played the stuttering character Jason Bolt in *Here Come The Brides*, staying on the show for two full years. By the end of his time on the show, his character had lost his stutter, but the show was eventually canceled.

Jason Bolt became very popular with fans, and Sherman realized this during a telethon in Buffalo. Suddenly, he wasn’t just a rising star; he had become famous.

“The show had just started, and we didn’t even have any records out yet,” Sherman told *Tulsa World*.

“Greg Morris from *Mission: Impossible* and Robert Brown from *Here Come The Brides* and I were asked to do the telethon. It was going really well when the fire marshal came in and said, ‘We have a problem. You need to come up to the second floor; you have to greet some people.’

“They opened up a window, and I looked out to see the parking lot of the TV station filled with people. It was a sea of faces,” he recalled. “It was just unbelievable. That was when I realized something big was happening.”

The following year was a bit of a “limbo” for Bobby. However, it was during this time that he began focusing on writing songs and experimenting with his eight-track recording equipment.

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Bobby Sherman became a professional singer, even though he hadn’t received much recognition for his voice yet.

**Bobby Sherman – Family, Wife, Children**
From 1969 to 1971, Sherman’s young fans bought millions of his recordings. He released popular singles like “Little Woman,” “Easy Come, Easy Go,” and “Julie, Do Ya Love Me.” He sold over a million copies of six different singles and four different albums.

“A song begins with an idea – one line,” he explained in 1971. “I build that into a complete lyric. Then, I fit the music around it.”

Sherman starred in a television series called *Getting Together*, a spinoff of *The Partridge Family*, about two songwriters, from 1970 to 1971. He also appeared in several guest roles after that.

At the same time as his rise to fame, he married his first wife, Patti Carnel, in 1971. Together, they had two sons, Christopher and Tyler.

Sherman wanted his kids to have a great place to grow up, so he decided to build a miniature model of Disneyland’s Main Street in his backyard. The project cost him about $15,000 and took around two and a half years to complete.

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Not everyone was happy with Bobby Sherman’s Disneyland project; his wife was reportedly annoyed by the constant noise of hammers.

**”I Didn’t Know What Home Was”**
“At one point, she said, ‘If you don’t finish it, I’ll kill you,’” Sherman joked in an interview with *People*.

Bobby’s children not only inspired him to build his own piece of Disneyland but also became the motivation for his new career. He became a major teen heartthrob before stars like Shaun Cassidy and David Cassidy. Eventually, he was “replaced” by performers like Donny Osmond.

At the height of his career, Sherman starred in hit television series while also releasing popular singles, gaining adoration from millions of fans. His albums *Sixteen* and *Tiger Beat* became two of his most cherished works.

Even though he was living out his dream, Sherman explained that he often filmed five days a week and had evening shows on weekends. This busy schedule took a toll on him. “It was so hectic for three years that I didn’t know what home was,” he told the *Washington Post*.

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“I was disoriented; I never knew where I was. I always had to be reminded. But, in all honesty, I must say I had the best of times because the concerts were great, and the fans were great. It was the proverbial love-in, but it just zapped so much out of me.”

**Bobby Sherman Left Music to Save Lives**
Then, in the middle of his celebrity status, Bobby suddenly decided to switch careers to a very important one. He chose to leave his music and television career to save lives.

Sherman was very involved in raising his children, and his then-wife Patti was afraid of blood. As anyone who has raised kids knows, accidents happen often, and Christopher and Tyler would sometimes fall and get hurt.

These falls sometimes caused bloody knees and other minor scrapes. Wanting to handle these situations better, Sherman decided to take some classes. He first took an introductory first aid and CPR class and later volunteered as an emergency medical technician.

“The very first call, I saved a little 5-year-old girl’s life. I thought, ‘Yeah, that’s the most incredible feeling,’” Bobby recalled in a 1994 interview.

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