In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
Woman Spends 10 Years at Home Raising 4 Kids, Husband Complains He is the Only Breadwinner
One evening, after an exhausting day at the office, Henry returned home, dropped his briefcase on the couch, loosened his tie, and settled in to watch TV. When Alison asked him for help retrieving something from a high shelf, he ignored her, choosing instead to relax. Frustrated, Alison asked again, and this time, Henry snapped.
“I’ve been working all day, and you’ve been home doing nothing! Can’t I just have a moment of peace?” he shouted. His words deeply offended Alison, leading to a heated argument. She defended her role, pointing out that managing the household and raising their kids was no small feat. Henry, still unwilling to see her side, retorted, “I work hard to provide for this family while you just cook, clean, and look after the kids. You get breaks. I don’t.”
Tired of the constant dismissals, Alison proposed they swap roles, challenging Henry to see firsthand who had the more demanding job. Confident that he would breeze through her responsibilities, Henry agreed to the switch.
The next morning, Alison prepared for her first day at Henry’s office, while Henry, eager to prove himself, tackled the household duties. Things quickly went awry. He burnt breakfast, struggled to get the kids ready for school, and even accidentally brought the wrong child home at pick-up time. His attempts to do laundry ended in disaster, with his white shirts dyed in bright colors. Dinner was another fiasco—burnt tortillas filled the kitchen with smoke, and Henry was left exhausted and overwhelmed.
By the fourth day of their challenge, Alison returned home to find the house spotless and dinner neatly plated on the table. For a moment, she was stunned. Had Henry finally mastered the art of homemaking? But Henry quickly revealed the truth—he had hired a housekeeper to manage the tasks he couldn’t handle.
“Honey, I’m so sorry,” Henry said, offering her a bouquet of roses. “I’ve realized just how hard you work, and I was wrong to take it for granted. You win.”
Alison, touched by his newfound understanding, forgave him. They decided to keep the housekeeper to lighten Alison’s load, allowing her more time with the children. From that day on, Henry never complained about his job again, and he was always quick to help Alison whenever she needed it.
Moral of the story: Don’t underestimate or take someone’s responsibilities for granted. Henry thought managing the household was easy until he experienced the challenges firsthand. It was only after swapping roles with his wife that he truly appreciated the hard work Alison had been doing all along.
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