Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
Step into the royal mansion of Kris Jenner, 68, and husband Corey Gamble, 43, in California’s six-bedroom, eight-bathroom home where they live out the rest of their lives with love
Mady Dahlstrom works as a content editor for the home remodeling website Porch.com. Take a look at her tweets.
It’s difficult to keep up with the Kardashians, but one designer rose to the occasion by completely renovating Kris Jenner’s six-bedroom, eight-bathroom Hidden Hills, California home. Interior designer Jeff Andrews, who has built the homes of Kourtney, Khloe, and most recently, Kylie, brought Jenner’s concept of a chic yet sophisticated family base camp to life. Andrews’ work is dripping with old Hollywood elegance and richly sumptuous decor. Andrews created what Jenner refers to as “livable glamour,” which allowed her ideal house to become a reality.
Is it true that one house can fit all? The Kardashian-Jenner residence was intended to be a family gathering place, as they have six children and four (soon to be five!) grandkids. “Kris is a fantastic chef, and having a large family meant that the kitchen needed to be both aesthetically pleasing and functional for entertaining,” adds Andrews.The Kardashian-Jenner home is ideal for opulent living, from the glistening crystal chandeliers over the formal dining table to the master bathtub where everything glamorous and beautiful happens.View Photos of Kris Jenner’s House in the Hidden Hills
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This spectacular entrance is just another example of how the creator of the reality TV series Keeping Up with the Kardashians never fails to create an impression. Sophisticated Hollywood elegance is exuded by the vintage modern chandelier, multiple staircases, and a black and white checkered floor.
In her family-style kitchen, Jenner prepares classic Kardashian-Jenner family recipes from her cookbook In the Kitchen with Kris ($22; amazon.com). Dedicated to providing food for her expanding family consisting of children, grandchildren, friends, and even her ex-partners, the kitchen features numerous islands and ample countertop space ideal for large gatherings.
The perfect hostess, Jenner added her own unique touches to her dining table. Andrews explains, “Kris had several chandeliers strewn all over the house, so I grouped three of my favorites above the dining table in a subtle, glamorous way.”
According to Andrews, “livability is, to me, having rooms that are loved, used, and visually appealing, but also rooms that you want to be in.” We would love to spend time in the Kardashian-Jenner home’s living room, which has luxurious furnishings and a huge antique fireplace!
Being a “momager” has its challenges, so this working mother manages her time well with her chic workspace. “Her office needed to be both functional and a reflection of her personality because she uses it every day for meetings and as her personal space,” adds Andrews.
A high-class closet is necessary for a high-profile lifestyle. Jenner’s wardrobe boasts a mirrored center island, patterned ceiling, and specific storage shelves with a Birkin to match every blazer—it has plenty space to hold more shoes than we could ever want.
With a focus on a limited color scheme that includes black, white, gray, and a dash of neutral and metallic colors, Andrews claims that “everything works together in harmony.” The main bedroom exudes sophisticated glamor, adorned with cashmere, rich wools, and silk. “Kris enjoys opulent, incredibly tactile, and well-made items,” he continues. “Her house exudes her personality everywhere.”
Jenner has a cosmetics, clothing, and glam area in her master bathroom. The master bathroom, one of the main focus areas for the renovation, strikes a mix between style and utility.
Although even the busiest families find time to unwind, Jenner’s garden is well-known for much more. Jenner’s patio was designed to entertain, as seen by her 58th birthday celebration held there and her yearly, lavish Christmas party.
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