Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.
For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.
Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.
The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.
Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.
Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.
“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.
Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.
Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.
But despite her suffering, she remains upbeat and happy and has even found love.
She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.
He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.
”He came and he showed me that I could live a true love story”, she says.
But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.
”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.
Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.
”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.
A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:
”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.
“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”
His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.
Karine wants others to realize the importance of being positive.
”Be happy, smile, because life happens only once,” she said.
In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.
Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.
Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.
Parents’ Love Drives Them to Remove Daughter’s Birthmark
Parents go above and above for their kids in order to assist and safeguard them. Celine Casey, a British woman, took an exceptional step for her daughter Vienna Brookshaw. Vienna, who was born in April 2021, had a birthmark between her eyebrows on her forehead.
Congenital melanocytic nevus (CMN), the birthmark, didn’t present any health issues, but Casey was concerned about the emotional effects it would have on Vienna as she got older.
An Uncommon Illness
A rare disorder known as congenital melanocytic nevus (CMN) occurs when a baby is born with a harmless cluster of pigment cells. These cells have the capacity to proliferate along with the child. Fearing that Vienna would grow to hate her parents, Casey went straight to the physicians to discuss her choices for having the birthmark removed, worried about the difficulties her daughter might encounter later on.
“We cherish every moment of Vienna’s journey and eagerly await the day she can express her own thoughts,” said Vienna’s mother, Casey, who is immensely compassionate. We would always and forever love her, birthmark or not.
The Need to Be Accepted
Casey was inspired to have Vienna’s birthmark removed because her infant seemed uncomfortable with people staring at her. Vienna was handled differently than other babies, which made her even more determined to pursue the removal.
Overcoming Difficulties
When Casey first requested the operation, the National Health Service (NHS) turned him down because they said it was more cosmetic than necessary for his medical well-being. Unfazed, Casey launched a crowdfunding effort to secure the required sum of money from kind donors. The campaign raised an incredible $52,000 in just one day. Unfortunately, they still need an extra $27,000 for the procedure because of higher hospital expenses during the COVID-19 pandemic.
In an attempt to raise additional funds, they went back to GoFundMe to pay for Vienna’s birthmark removal procedure. “Everyone has insecurities about their body,” said Casey. We perceived it differently, even though the doctor assured us that it wouldn’t currently affect Vienna’s mental health. Little ones are sensitive and pick up on these things, especially when they begin school at age three.
A Pathway to Recovery
Vienna’s birthmark has been successfully removed, and she is now a healthy two-year-old with just a tiny scar remaining on her forehead. Casey frequently remarks on her newborn girl’s extreme beauty while providing regular updates on her daughter’s recuperation.
The concerned parents went so far as to fly to London to have the surgeon confirm that the little scar was healing. Vienna had already undergone three operations and therapies, so they wanted to make sure she wouldn’t need any more. Fortunately, she is well at the moment and doesn’t need any more medical attention.
Vienna’s Promising Future
We send little Vienna our warmest regards. We wish her a lifetime of health and pleasure as she grows up. Do not hesitate to tell others about her inspirational tale!
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