When Emiliana Rodriguez was a little girl, she recalls watching friends play a nighttime soccer match when one of the players abruptly died on the pitch.
Unaware of what had transpired, Rodriguez, a native of Bolivia, developed a phobia of the dark and the “monster”—the silent killer known as Chagas—that she had been told only appears at night.
Chagas disease is a unique sort of illness that is spread by nocturnal insects. It is also known as the “silent and silenced disease” that infects up to 8 million people annually, killing 12,000 people on average.
Emiliana Rodriguez, 42, discovered she had to live with Chagas, a “monster,” after relocating to Barcelona from Bolivia 27 years ago.
“Night is when the fear generally struck. I didn’t always sleep well,” she admitted. “I was worried that I wouldn’t wake up from my sleep.”
Rodriguez had specific tests when she was eight years old and expecting her first child, and the results indicated that she carried the Chagas gene. She recalled the passing of her buddy and remarked, “I was paralyzed with shock and remembered all those stories my relatives told me about people suddenly dying.” “I wondered, ‘What will happen to my baby?’”
Rodriguez was prescribed medicine, though, to prevent the parasite from vertically transmitting to her unborn child. After her daughter was born, she tested negative. Elvira Idalia Hernández Cuevas, 18, was unaware of the Mexican silent killer until her 18-year-old son was diagnosed with Chagas.
Idalia, an eighteen-year-old blood donor from her birthplace near Veracruz, Mexico, had a positive diagnosis for Chagas, a disease caused by triatomine bugs, often known as vampire or kissing bugs and bloodsucking parasites, when her sample was tested.
In an interview with the Guardian, Hernandez stated, “I started to research Chagas on the internet because I had never heard of it.” When I read that it was a silent murderer, I became really afraid. I had no idea where to go or what to do.
She is not alone in this; a lot of people are ignorant of the diseases that these unpleasant bugs can spread. The term Chagas originates from Carlos Ribeiro Justiniano Chagas, a Brazilian physician and researcher who made the discovery of the human case in 1909.
Over the past few decades, reports of the incidence of Chagas disease have been made in Europe, Japan, Australia, Latin America, and North America.
Kissing bugs are mostly found in rural or suburban low-income housing walls, where they are most active at night when humans are asleep. The insect bites an animal or person, then excretes on the skin of the victim. The victim may inadvertently scratch the area and sever the skin, or they may spread the excrement into their mouth or eyes. This is how the T. cruzi infection is disseminated.
The World Health Organization (WHO) estimates that between 6 and 7 million people worldwide—roughly 8 million people in Mexico, Central America, and South America—have Chagas disease; the majority of these individuals remain oblivious to their illness. These estimates are provided by the Centers for Disease Control and Prevention (CDC). The persistent infection might be fatal if untreated. According to the Guardian, Chagas disease kills over 12,000 people year, “more people in Latin America than any other parasite disease, including malaria.”
Despite the fact that these bugs have been found in the United States—nearly 300,000 people are infected—they are not thought to be endemic.
While some people never experience any symptoms, the CDC notes that 20 to 30 percent experience gastrointestinal or heart problems that can cause excruciating pain decades later.
Furthermore, only 10% of cases are detected globally, which makes prevention and treatment exceedingly challenging.
Hernández and her daughter Idalia went to see a number of doctors in search of assistance, but all were also uninformed about Chagas disease and its management. “I was taken aback, terrified, and depressed because I believed my kid was going to pass away. Above all, Hernandez stated, “I was more anxious because I was unable to locate any trustworthy information.”
Idalia finally got the care she required after receiving assistance from a family member who was employed in the medical field.
“The Mexican government claims that the Chagas disease is under control and that not many people are affected, but that is untrue,” Hernández asserts. Medical practitioners misdiagnose Chagas disease for other heart conditions because they lack knowledge in this area. Most people are unaware that there is Chagas in Mexico.
The World Health Organization (WHO) has classified chagas as a neglected tropical disease, which means that the global health policy agenda does not include it.
Chagas is overlooked in part because, according to Colin Forsyth, a research manager at the Drugs for Neglected Diseases Initiative (DNDi), “it’s a silent disease that stays hidden for so long in your body… because of the asymptomatic nature of the initial part of the infection.”
Forsyth went on to say, “The people affected just don’t have the power to influence healthcare policy,” making reference to the impoverished communities. It’s kept hidden by a convergence of social and biological factors.
Chagas, however, is becoming more well recognized as it spreads to other continents and can also be transferred from mother to child during pregnancy or childbirth, as well as through organ and blood transfusions.
The main objective of the Chagas Hub, a UK-based facility founded by Professor David Moore, a doctor at the Hospital for Tropical Diseases in London, is to get “more people tested and treated, and to manage the risk of transmission, which in the UK is from mother to child,” according to Professor Moore.
Regarding the WHO’s 2030 aim for the eradication of the disease, Moore stated that progress toward it is “glacial” and added, “I can’t imagine that we’ll be remotely close by 2030.” That seems improbable.
Two medications that have been available for more than 50 years to treat chagas are benznidazole and nifurtimox, which according to Moore are “toxic, unpleasant, not particularly effective.”
Although the medications are effective in curing babies, there is no guarantee that they will prevent or halt the advancement of the condition in adults.
Regarding severe adverse effects, Rodriguez remembers getting dizziness and nausea as well as breaking out in hives. She completed her therapy, and she gets checked out annually.
Moore goes on to say that while creating stronger anti-Chaga drugs is crucial to stopping the disease’s spread, pharmaceutical companies are currently not financially motivated to do so.
As president of the International Federation of Associations of People Affected by Chagas condition (FINDECHAGAS), Hernández is on a mission to raise awareness of the condition until there is a greater need on the market for innovative treatments.
In Spain, Rodriguez is battling the “monster” as part of a campaign to increase public awareness of Chagas disease being conducted by the Barcelona Institute for Global Health.
“I’m tired of hearing nothing at all,” Rodriguez declares. “I want Chagas to be discussed and made public. I’m in favor of testing and therapy for individuals.
They are being heard, too.
World Chagas Disease Day was instituted by the WHO on April 14, 1909, the day Carlos discovered the disease’s first human case.The WHO states that “a diversified set of 20 diseases and disease categories are set out to be prevented, controlled, eliminated, and eradicated through global targets for 2030 and milestones.” And among them is Chagas.
To prevent a possible infestation, the CDC suggests taking the following steps:
Close up any gaps and fissures around doors, windows, walls, and roofs.
Clear out the rock, wood, and brush piles close to your home.
Put screens on windows and doors, and fix any tears or holes in them.
Close up gaps and crevices that lead to the exterior, crawl areas beneath the home, and the attic.
Keep pets inside, especially during the evening.
Maintain the cleanliness of your home and any outdoor pet resting places, and check for bugs on a regular basis.
If you believe you have discovered a kissing insect, the CDC recommends avoiding crushing it. Alternatively, carefully put the bug in a jar, fill it with rubbing alcohol, and then freeze it. It is then recommended that you bring the bug’s container to an academic lab or your local health authority so that it can be identified.
Please tell this tale to help spread the word about an illness that goes unnoticed!
This actor went from $150 a month to running a farm with his famous wife
Can you guess the iconic actor who went from living in a rundown New York “flophouse” for just $150 a month to owning a peaceful farm with his family?
This actor’s humble beginnings are a far cry from his current life of farm animals and fresh home-grown veggies. Growing up, he knew from an early age that he wanted to be an actor.
After trips to the movie theater, he would come home and immediately dress up as one of the characters from the film, fully immersing himself in the world of make-believe. His favorite childhood toy? A box of old clothes his mom had saved for him, which he used to fuel his imagination and creativity.
Wanted the ”real thing”
In 1976, fresh out of Philadelphia, he moved to New York City to chase his dream of acting. He spent months crashing on his sister’s couch before finding a cheap place through an ad in the Village Voice – a no-frills, budget-friendly “artist’s residence.”
Though the place was far from glamorous, it was exactly what he could afford at the time. In fact, the actor shared that it wasn’t even a single room – he had to move in with a roommate.
His roomie was a classical pianist, and the two shared the space for four years. In interviews, the actor fondly reminisces about the calming sounds of the piano that filled the apartment late at night.
While living in The Big Apple, the actor appeared in a production at the Circle in the Square Theater School. ”I wanted life, man, the real thing,” he later recalled to Nancy Mills of Cosmopolitan.
”The message I got was ‘The arts are it. Business is the devil’s work. Art and creative expression are next to godliness.’”
So, can you guess who this determined actor is?
He has a tall, lean frame and a signature look that’s a mix of rugged and charming.
With a square jaw and high cheekbones, he’s got a face that can go from intense to relatable in an instant. His light brown hair is often casually styled, and his deep-set eyes add a mysterious vibe. You might recognize his easy-going, yet timeless style that’s made him a fan favorite for decades. Can you guess who he is?
Alright, we won’t drag this out any longer.
While this Golden Globe Award winner was living in that tiny, $150-a-month space, he was also preparing for his big break.
Household name
Fast forward a few years, and he would go on to star in iconic films like Footloose, Beauty Shop, and The Woodsman, becoming a household name.
So here it is – it’s Kevin Bacon! From his early days as a young actor in New York to now living on a farm with his wife and their animals, his journey has truly been one to follow
Now, the actor is living a completely different life. He and his wife, fellow actress Kyra Sedgwick, now shares a 40-acre farm in Sharon, Connecticut. They have several animals, including goats, pigs, alpacas, and miniature horses.
”I love animals, they are a joy to be around, and they’re very, very calming for me,” Bacon said. ”But we also really love to go into the garden and get fresh herbs or tomatoes or basil or peppers or zucchini.”
And talk about how Bacon is living a completely different life today compared to his bachelor days in New York. He’s got more millions in the bank now – and doesn’t have to rely on his old roommate’s cooking skills anymore.
”He would cook,” Bacon said of his former roommate in New York.
”I didn’t know anything about cooking since I was used to going to the store and getting a sandwich or eating a slice of pizza.”
He added, ”And I watched my roommate, and he was a very frugal man so he was not going to go out and spend money to eat in a restaurant or even get something to go. He would make his own food and I got very inspired by that.”
Gradually, both Kevin and Kyra shares snippets of their daily lives on social media, with Sedgwick posting so many videos of her and their goats to TikTok that people now recognize her for it, rather than her acting roles.
“People were like, ’We love you singing with the goats.’ Kevin and I are like, ’Great, have you seen our movies or TV shows?’ But it makes people happy,” the actress and producer told People.
They even shared that his relationship with his animals has caused a shift in his eating habits — he no longer eats goat or pig products.
”It’s all about the animals,” Kevin says, adding that his wife won’t let him get any more animals, as he’d likely stop eating even more types of food. The couple also loves tending to their garden, growing fresh herbs, tomatoes, and peppers.
Interestingly, the Footloose star and Sedgwick aren’t the only celebs drawn to farm life. In fact, famed actress Jennifer Garner decided to buy back the farm her mother grew up on and transform it into an organic produce project for baby food.
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